Se encuentra usted aquí

    • You are here:
    • Inicio > Events > CRG Scientific Coffee: "What is known about rare diseases?"

CRG Scientific Coffee: "What is known about rare diseases?"

CRG Scientific Coffee: "What is known about rare diseases?"CRG Scientific Coffee: "What is known about rare diseases?"

13/12/2011
Add to Calendar

CRG Scientific Coffee: "What is known about rare diseases?"

Barcelona, Spain

 

WHAT IS KNOWN ABOUT RARE DISEASES?

Have you heard of Huntington's chorea, the fragile X syndrome or Noonan syndrome?

Do you know what a rare disease is?
Do you know how many types of rare diseases are there?
Did you know that in Spain there are over 3 million people affected by rare diseases?
How are patients and families organized to share questions and concerns?
Which role does research play currently in this context?

Invited speakers:

  • Mª  de las Mercedes Pastor (Fundación FEDER para la Investigación de Enfermedades Raras)
  • Toni Andreu (Institut de Recerca Vall d’Hebron)
  • Mara Dierssen (Centre de Regulació Genòmica)

Free of charge - No registration is required - Limited seating

Date: 13th December 2011

Time: 19.00 h

Place: Sala Mirador, Centre de Cultura Contemporània de Barcelona (CCCB). Montalegre 5, Barcelona

For further information: comunicacio@crg.eu